Resources (source CDC.gov/autism)
100 Days Kit, Autism Speaks
This kit provides information to help families get through the first steps of an autism diagnosis.
Autism Source, Autism Society of America (ASA)
ASA’s Autism Source is a database of resources in local communities. It includes contact information for ASA chapters and other local supports.
Autism NOW
Autism Now is an initiative of The Arc and The Administration on Developmental Disabilities. This national autism resource and information center is a central point of resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other key stakeholders.
Autism Wandering Awareness Alerts Response Education (AWAARE)
Working to prevent wandering incidents and deaths within the autism community.
Department of Education
The Department of Education (ED) has resources to assist with the educational needs of children with autism spectrum disorders and other disabilities. The ED’s Special Education Technical Assistance and Dissemination Network
links to a variety of websites and online resources that focus on special education issues, such as policy, technology, curriculum, and parent trainings. In addition, the Office of Special Education and Rehabilitative Services
(OSERS) within the ED has resources for parents and individuals, school districts, and states in the areas of special education, vocational rehabilitation, and research.
Life Journey Through Autism Series, Organization for Autism Research (OAR)
OAR has published five Life Journey guidebooks and The Best of The OARacle to date. You can read their descriptions, preview each online, or download copies at no cost. Most are available in Spanish.
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A Parent’s Guide to Assessment
This guide helps parents understand the assessment process and learn how to use assessment results to improve their child’s services. - A Parent’s Guide to Research
- This guide helps parents find, understand, and evaluate autism research studies.
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A Guide for Transition to Adulthood
This guide provides an overview of the transition from school to adulthood.
Mental Health Services Locator, National Mental Health Information Center
The Mental Health Services Locator helps families and professionals find information about mental health services and resources by state and/or region. The National Mental Health Information Center is part of the Substance Abuse and Mental Health Services Administration of the Department of Health and Human Services.
Operation Autism for Military Families
Operation Autism is a web-based resource specifically designed and created to support military families that have children with autism. It is from the Organization for Autism Research (OAR) and the American Legion Child Welfare Foundation.
School Accreditation, National Association for the Education of Young Children (NAEYC)
NAEYC provides accreditation for schools that meet certain standards, as well as resources, tools, and information for families and childcare providers.
State Programs, National Dissemination Center for Children with Disabilities
(NICHCY)
Locate organizations and agencies within each state that address disability-related issues. NICHCY has compiled a resource directory by state
that lists key programs for children with developmental disabilities and their families. The lists include state agencies serving children and youth with disabilities, state chapters of disability organizations and parent groups, and parent training and information projects.
Children’s Health Insurance Program
Insure Kids Now! is a national campaign to link the nation’s 10 million uninsured children–from birth to age 18–to free and low-cost health insurance. It is sponsored by the Department of Health and Human Services. Each state has a Children’s Health Insurance Program that provides free or low-cost health insurance for eligible children. The website has basic facts about these programs as well as links to every state’s program
for children. The site also has information on where you can learn who is eligible for the program, how to apply, and what services are covered. You can get information in English and Spanish. En Español: ¡Asegure a sus Hijos Ahora!
| El Programa de su Estado
GovBenefits.gov
GovBenefits.gov is a partnership of Federal agencies with a shared vision – to provide improved, personalized access to government assistance programs. This website can help you determine if there are government benefits you can receive.
Medicaid
Medicaid is a federal program that helps certain groups of people pay for medical care. Each state regulates its own Medicaid program, so the rules may be slightly different state-to-state. To get information, contact the Medicaid office in your state.
The Arc Medicaid Reference Desk
The Medicaid Reference Desk is a tool to help people with intellectual and developmental disabilities find out what Medicaid can offer them. It is a project of The Arc and the Administration on Developmental Disabilities.
Social Security Benefits
This booklet is for the parents, caregivers or representatives of children under age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It is also for adults who became disabled in childhood and who might be entitled to Social Security Disability Insurance (SSDI) benefits. (SSDI benefit is called a “child’s” benefit because it is paid on a parent’s Social Security earnings record.)
Sound Advice on Autism
To answer parents’ questions about autism spectrum disorders, the American Academy of Pediatrics (AAP) offers a collection of interviews with pediatricians, researchers and parents.
Special Needs Trust/Estate Planning
Plan ahead for your child’s financial future by writing a specialized will and preparing other documents that will help your child access his or her government benefits when you are gone.
Disaster Planning
AutismCares
A growing number of national autism organizations partnered to form AutismCares, a national initiative to help families with members who have autism that are challenged with disasters in their community. AutismCares registers families through a free online service to help manage and store their health care records and ensure that trained case managers are able to locate them more effectively in case disaster strikes their community.
Assistive Technology
People who have an autism spectrum disorder may use assistive technology (AT). AT is any item that helps people do things in their daily lives. Examples of AT devices include a keyguard that helps children find the right keys on a computer keyboard, a simpler remote control for a TV or stereo, an adapted mouse that makes getting around on the computer easier, switches that help children play with toys, and talking books.
Assistive Devices, MEDLINEplus
MEDLINEplus is an online service of the National Library of Medicine and the National Institutes of Health. Updated daily, the site offers information on a range of health topics, including autism and assistive devices, in English
and Spanish (En Español)
.
Caring for Children With Autism Spectrum Disorders: A Resource Toolkit for Clinicians
A clinical resource to assist in the recognition, evaluation, and ongoing management of autism spectrum disorders throughout the patient’s lifespan from the American Academy of Pediatrics (AAP).
Developmental Screening/Testing Coding [102 KB, 8 Pages, 508]
This fact sheet for primary care pediatricians provides guidance on how to appropriately report limited and extended developmental screening and testing services from American Academy of Pediatrics (AAP).
Diagnostic and Statistical Manual of Mental Disorders
The Diagnostic and Statistical Manual of Mental Disorders (DSM), published by the American Psychiatric Association, is the standard classification of mental disorders used by mental health professionals in the United States.
The International Classification of Diseases
The International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM) is the official system of codes for diagnoses and procedures in the United States. The International Classification of Diseases, Tenth Revision (ICD-10)
is used internationally.
M-CHAT
(Modified Checklist for Autism in Toddlers)
Download the M-CHAT, instructions and permissions for use, scoring instructions, and follow-up interview by clicking on the links below. The follow-up interview is designed to reduce the false positive rate (meaning children who fail the M-CHAT but are not likely to have an autism spectrum disorder).
Instructions and Permissions for using the M-CHAT
M-CHAT Scoring Instructions
M-CHAT Scoring Template
M-CHAT Follow-up Interview
Early Intervention
Act Early on Developmental Concerns: Partnering with Early Intervention
A presentation that offers health care providers a general overview of early intervention services as well as practical tips, resources, and tools for working with early intervention and community services from the American Academy of Pediatrics (AAP).
Developmental and Behavioral Pediatrics Online
Developmental and Behavioral Pediatrics Online is for professionals interested in child development and behavior in a medical setting. The website focuses on primary care development and behavior, including early intervention and screening, and provides articles, handouts, and materials about developmental disabilities developed for professionals and parents. It also offers a practice section with information to support primary and specialty health care practice.
Autism and Asperger Syndrome Educator’s Guides, Organization for Autism Research (OAR)
These guides provide teachers and other education professionals with a plan for teaching a child with autism or Asperger syndrome in the general classroom setting. In addition to these guides, OAR has other tips for educators
on its website.
The Center on the Social and Emotional Foundations for Early Learning (CSEFEL)
CSEFEL is focused on promoting the social emotional development and school readiness of young children birth to age 5. They have user-friendly training materials, videos, and print resources which are available directly from this website to help early care, health and education providers implement this model.
The National Professional Development Center on Autism Spectrum Disorders
This organization strives to promote optimal development and learning of infants, children, and youth with ASD and provide support to their families through the use of evidence-based practices. They provide resources for educators that are evidence-based.
National Association for the Education of Young Children (NAEYC)
NAEYC provides accreditation for schools that meet certain standards, as well as resources, tools, and information for families and childcare providers.
National Association of Special Education Teachers
The National Association of Special Education Teachers (NASET) has one of the largest sources of information on special education in the United States that teachers have identified as being the most relevant issues faced in the field. The NASET database is updated daily.
Teaching Tips for Children and Adults with Autism
The article “Teaching Tips for Children and Adults with Autism” by Temple Grandin has 28 tips to help teachers in fostering a classroom environment conducive to learning for children with autism. Dr. Grandin is an associate professor at Colorado State University and a well-known adult with autism.
Young Children with Challenging Behavior
The Technical Assistance Center on Social Emotional Intervention for Young Children, also known as TACSEI, takes the research that shows which practices improve the social-emotional outcomes for young children with, or at risk for, delays or disabilities and creates free products and resources to help decision makers, caregivers, and service providers apply these best practices in the work they do every day.
Zero to Three
Provides professionals working with very young children and their families an extensive collection of resources aimed at supporting the work of professionals in a variety of early childhood settings.
- http://www.imcpl.org/readytoread
- https://www.aetonline.org
- http://www.ldonline.org
- http://usautism.org
- http://www.teachervision.com
- http://dyslexia.org
- These following resources are from Linda (Caring4OurKids.com).
They are a group of parents of children with Autism Spectrum Disorder - National Institute of Mental Health
- Reduce the Noise: Help Loved Ones with Sensory Overload Enjoy Shopping
- Home Modifications for Parents of Special Needs Kids
- Association for Science in Autism Treatment (ASAT)
- Autism PDD (NOS) - Pervasive Developmental